It’s a bird… it’s a plane… it’s a Tiny Superhero!
In August 2012, I dusted off my sewing machine and made a superhero cape for my nephew’s second birthday. I then made one for my son and my dog. Meanwhile, I had been following the blog of a sweet girl named Brenna who was born with a very rare and severe skin disorder. I realized then that while my nephew and son looked cute in their capes, Brenna needed one! We contacted Brenna’s family and sent her a cape in January 2013. We then shared her story on our blog, and in that moment, TinySuperheroes was born.
TinySuperheroes seeks to empower Extraordinary kids — one cape at a time. We donate capes to Extraordinary TinySuperheroes who exemplify strength and determination as they overcome illness or disability. Once these Extraordinary TinySuperheroes are comfortable in their new capes, we feature them on our blog, in hopes of giving them a voice, their illness or disability a face, and the world the opportunity to stretch.
Super Remedy is from Alaska. In May of this year, Remedy began to get very sick. An initial doctor’s visit prescribed medicine to treat allergies, which were the suspected cause of the illness. When she wasn’t getting any better, they returned to the doctor who then believed it was an inner ear dysfunction. She had a trip planned with her dad to visit family in Juneau, Alaska, and with the doctor’s OK they continued with their plans. Remedy wasn’t responding to this new medicine either and became very ill on their trip, and they ended up in the ER. Meanwhile, her amazing mother was still home and working during Remedy’s ER visit. She received a voicemail that Remedy was getting a CAT scan. Two hours later, the doctors confirmed a brain tumor and Remedy & her dad were on a life flight to Seattle Children’s Hospital, and her mom was on a flight to Seattle just hours behind them. That way May 5th, and 5 months later Super Remedy & her family have made their second home in Seattle.
Remedy was diagnosed with brain cancer called Pineoblastoma – a rare form of brain tumor which accounts for less than 2% of all brain tumors in children under the age of 5. Just 4 days after their arrival, Super Remedy had surgery to place a shunt in her brain to drain excess spinal fluid, after which she would begin chemo. “They say it’s about 50 percent success rate; there are no guarantees but we have placed her in God’s hands, we have a chance to fight and we’re taking it.” – Super Remedy’s Mom
Robyn writes on the TinySuperheroes Website:
I receive so many Thank You’s from the parents of these Extraordinary TinySuperheroes, but it’s backwards – I need to be thanking them ! Thanking them for sharing their stories, for having hope, for educating, for dedicating their life to their child’s well-being, and for showing us an untainted picture of love. See, we give these TinySuperheroes capes, but they give us (all of us) SO much more than that. Everyday I am more and more convinced that it’s no joke – these kids really are TinySuperheroes.
TinySuperheroes has sent over 1700 capes since January, and there are TinySuperheroes in 14 countries. They just sent their first cape to South Africa. Click here for more information.